Myalgic Encephalomyelitis (ME) / Chronic Fatigue Syndrome (CFS), is a chronic, debilitating condition with a wide range of symptoms that can vary in type and intensity affecting over 250,000 people in the UK alone. Symptoms include severe and debilitating fatigue, painful muscles and joints, disordered sleep, gastric disturbances, balance and visual disturbances, poor memory and concentration, speech difficulties and hyper-sensitivity to noise, light and touch.
In some the effects may be minimal but in a large number, lives are changed drastically: in the young, schooling and higher education can be severely disrupted; in the working population, employment becomes impossible for many. For all, social life and family life become restricted and in some cases severely strained. People may be housebound or confined to bed for months or years.
For all, it is largely an invisible illness.
Ely ME Support Group is a local Facebook group started by Helena Scott after a chance meeting with another sufferer in Ely. The group offers a place to chat and exchange information and ideas for people with ME, their carers and family. Facebook Ely ME Support Group